London · Prayer Requests · Uncategorized

Hi Ho Hi Ho its off to London we go!

Hi everyone, I apologise it has been such a long time since I've last posted anything; its been a very difficult time recently and new health problems keep cropping up, it is clear this neuromuscular problem is much more complex than anyone originally thought and honestly I haven't been coping very well. In short life… Continue reading Hi Ho Hi Ho its off to London we go!

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London · Medical and all things EDS · My faith · Truths of a chronic illness

An update from London

Hello everyone, I am sorry I haven't updated in such a long time, to be honest I've been struggling to find the words to tell you all how London went and I apologise in advance for the complexity of what I am going to tell you, please bear with me as I am struggling to… Continue reading An update from London

London · Medical and all things EDS · My faith · Prayer Requests

I’m going to London!!!

Hi!¬†Yet again it has almost been a month since I have posted, sorry. So far 2015 has been filled with lots of emotions both good and bad, however finally funding has been approved to start treatment in London and I am pleased to announce I leave for my first two week inpatient hospital stay within… Continue reading I’m going to London!!!

London · Medical and all things EDS · My faith

More Trust. Less Worry

Hello everyone! I want to again thank-you for all your continued support, encouragement and prayers. Right now I'm having a difficult time. Yesterday was a particularly bad day for me which resulted in a knee dislocation, my regular shoulder pain and then falling over and hitting my face off my bookcase - I really am… Continue reading More Trust. Less Worry

Timeline - My Story

Day 7: Hospital admissions, pain and lots of waiting

Hi! I hope you all had a good weekend and a nice break ready to begin another busy week. Today is the last daily blog post of my timeline, which takes us up to right now in my life and what's going on. April 2014 As I'd mentioned on Saturday, just 10 weeks after my… Continue reading Day 7: Hospital admissions, pain and lots of waiting