Awareness & Causes · Medical and all things EDS · My faith · Truths of a chronic illness

Ehlers-Danlos syndrome: the most neglected disease in the history of medicine.

"No other disease in the history of modern medicine, has been neglected in such a way as Ehlers-Danlos syndrome." Professor Rodney Grahame. When I read this I am shocked and saddened to the core, you may think this statement is incorrect but Professor Rodney Grahame is the top UK specialist in the field of Ehlers-Danlos… Continue reading Ehlers-Danlos syndrome: the most neglected disease in the history of medicine.

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Medical and all things EDS · My faith · Truths of a chronic illness

Beauty in the Brokenness

Hello everyone, I apologise for taking such a long unexpected break from posting here. The past months following July have been a rollercoaster of events, which have been some of the best and worst months of my life. However I thought it was now time to get back to writing and update you on what… Continue reading Beauty in the Brokenness

Awareness and Causes · Medical and all things EDS · Truths of a chronic illness

EDS Awareness Month: Types & facts of Ehlers Danlos

Hi everyone, I apologise for not getting a post uploaded last week for EDS awareness, I really had hoped to get this post up before now however I've been in and out of hospital a lot last week and as usual EDS has been getting in the way of my life and the things I… Continue reading EDS Awareness Month: Types & facts of Ehlers Danlos

London · Medical and all things EDS · My faith · Truths of a chronic illness · Uncategorized

London: The Toughest Week Yet

Hey everyone, I hope you are all well and enjoying this beautiful weather. I got back from London on Sunday evening with a sigh of relief and exhaustion as I collapsed into bed. It is not an exaggeration when I say I am extremely happy to be home despite how lovely London is. Last week… Continue reading London: The Toughest Week Yet

CD · London · Medical and all things EDS · Prayer Requests · Truths of a chronic illness

A long overdue update

Hi everyone, I hope you're all well and enjoyed a lovely Christmas! I apologise my blog has been inactive for almost a month now but things have been very difficult for me over the past 4 week and I have spent most of my time in hospital. Thankfully though I did get discharged from hospital… Continue reading A long overdue update

My faith · Truths of a chronic illness

Limbs are not a right to be demanded, they are a gift.

Hey everyone, Sorry it has been awhile since I have updated my blog, I've been having a very difficult time. Over the past week I have had two dislocations of my "good" shoulder, meaning two trips to hospital and two lots of sedation to relocate my shoulder. To say the least, this has definitely been… Continue reading Limbs are not a right to be demanded, they are a gift.

Medical and all things EDS · My faith · Truths of a chronic illness

“Do you believe I can do this?”….Become what you believe

Hi all, I had planned to update at the end of the week but that just didn't go to plan, I've been to sore and weak and overall the┬ápast week really hasn't been easy, in fact some of it has been awful. This is the truth of living with a chronic illness, it hurts a… Continue reading “Do you believe I can do this?”….Become what you believe