Awareness & Causes · Medical and all things EDS · My faith · Truths of a chronic illness

Ehlers-Danlos syndrome: the most neglected disease in the history of medicine.

"No other disease in the history of modern medicine, has been neglected in such a way as Ehlers-Danlos syndrome." Professor Rodney Grahame. When I read this I am shocked and saddened to the core, you may think this statement is incorrect but Professor Rodney Grahame is the top UK specialist in the field of Ehlers-Danlos… Continue reading Ehlers-Danlos syndrome: the most neglected disease in the history of medicine.

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Medical and all things EDS · My faith · Truths of a chronic illness

Beauty in the Brokenness

Hello everyone, I apologise for taking such a long unexpected break from posting here. The past months following July have been a rollercoaster of events, which have been some of the best and worst months of my life. However I thought it was now time to get back to writing and update you on what… Continue reading Beauty in the Brokenness

London · Medical and all things EDS · My faith · Truths of a chronic illness · Uncategorized

London: The Toughest Week Yet

Hey everyone, I hope you are all well and enjoying this beautiful weather. I got back from London on Sunday evening with a sigh of relief and exhaustion as I collapsed into bed. It is not an exaggeration when I say I am extremely happy to be home despite how lovely London is. Last week… Continue reading London: The Toughest Week Yet

London · Medical and all things EDS · My faith · Prayer Requests

I’m going to London!!!

Hi! Yet again it has almost been a month since I have posted, sorry. So far 2015 has been filled with lots of emotions both good and bad, however finally funding has been approved to start treatment in London and I am pleased to announce I leave for my first two week inpatient hospital stay within… Continue reading I’m going to London!!!

My faith · Truths of a chronic illness

Limbs are not a right to be demanded, they are a gift.

Hey everyone, Sorry it has been awhile since I have updated my blog, I've been having a very difficult time. Over the past week I have had two dislocations of my "good" shoulder, meaning two trips to hospital and two lots of sedation to relocate my shoulder. To say the least, this has definitely been… Continue reading Limbs are not a right to be demanded, they are a gift.

CD · My faith

Nothing can separate me from Christ

Hi everyone, I apologise it has been quite awhile since I have posted; everything has been pretty much the same with me; pain; exhaustion; and busy with CD planing and law coursework. However recently I've found everything seems to be going wrong. For example, the admission for London, small things seems to have went wrong… Continue reading Nothing can separate me from Christ