"No other disease in the history of modern medicine, has been neglected in such a way as Ehlers-Danlos syndrome." Professor Rodney Grahame. When I read this I am shocked and saddened to the core, you may think this statement is incorrect but Professor Rodney Grahame is the top UK specialist in the field of Ehlers-Danlos… Continue reading Ehlers-Danlos syndrome: the most neglected disease in the history of medicine.
Hello everyone, I apologise for taking such a long unexpected break from posting here. The past months following July have been a rollercoaster of events, which have been some of the best and worst months of my life. However I thought it was now time to get back to writing and update you on what… Continue reading Beauty in the Brokenness
Hey everyone, I hope you are all well and enjoying this beautiful weather. I got back from London on Sunday evening with a sigh of relief and exhaustion as I collapsed into bed. It is not an exaggeration when I say I am extremely happy to be home despite how lovely London is. Last week… Continue reading London: The Toughest Week Yet
"There is only one way to happiness and that is to cease worrying about things which are beyond the power of our will." Epictetus In the next few days I go back to London again for my next inpatient stay in hospital which I have been dreading after the incredible pain from the time… Continue reading God is our safety
Yesterday I decided to get out of the house for a while despite the pain, since sitting in the house was beginning to drive me mad. Mum and I went for coffee yesterday and afterwards were browsing around the books in the shop when a man noticed I was struggling to lift a book off a… Continue reading A Calling to Love
Hello everyone, I am sorry I haven't updated in such a long time, to be honest I've been struggling to find the words to tell you all how London went and I apologise in advance for the complexity of what I am going to tell you, please bear with me as I am struggling to… Continue reading An update from London
Hi! Yet again it has almost been a month since I have posted, sorry. So far 2015 has been filled with lots of emotions both good and bad, however finally funding has been approved to start treatment in London and I am pleased to announce I leave for my first two week inpatient hospital stay within… Continue reading I’m going to London!!!
Hey everyone, Sorry it has been awhile since I have updated my blog, I've been having a very difficult time. Over the past week I have had two dislocations of my "good" shoulder, meaning two trips to hospital and two lots of sedation to relocate my shoulder. To say the least, this has definitely been… Continue reading Limbs are not a right to be demanded, they are a gift.
Hi everyone, I apologise it has been quite awhile since I have posted; everything has been pretty much the same with me; pain; exhaustion; and busy with CD planing and law coursework. However recently I've found everything seems to be going wrong. For example, the admission for London, small things seems to have went wrong… Continue reading Nothing can separate me from Christ
Hi guys, I thought now would be the appropriate time to tell you all a bit more about my upcoming CD and explain more of the background to it. Over the past year God has been prompting me down a path to record this CD with my two friends Naomi and Andrew. As a group we want… Continue reading Under His Wings