London · Prayer Requests · Uncategorized

Hi Ho Hi Ho its off to London we go!

Hi everyone, I apologise it has been such a long time since I've last posted anything; its been a very difficult time recently and new health problems keep cropping up, it is clear this neuromuscular problem is much more complex than anyone originally thought and honestly I haven't been coping very well. In short life… Continue reading Hi Ho Hi Ho its off to London we go!

London · Medical and all things EDS · My faith · Truths of a chronic illness · Uncategorized

London: The Toughest Week Yet

Hey everyone, I hope you are all well and enjoying this beautiful weather. I got back from London on Sunday evening with a sigh of relief and exhaustion as I collapsed into bed. It is not an exaggeration when I say I am extremely happy to be home despite how lovely London is. Last week… Continue reading London: The Toughest Week Yet

London · Medical and all things EDS · My faith · Prayer Requests

I’m going to London!!!

Hi! Yet again it has almost been a month since I have posted, sorry. So far 2015 has been filled with lots of emotions both good and bad, however finally funding has been approved to start treatment in London and I am pleased to announce I leave for my first two week inpatient hospital stay within… Continue reading I’m going to London!!!

CD · London · Medical and all things EDS · Prayer Requests · Truths of a chronic illness

A long overdue update

Hi everyone, I hope you're all well and enjoyed a lovely Christmas! I apologise my blog has been inactive for almost a month now but things have been very difficult for me over the past 4 week and I have spent most of my time in hospital. Thankfully though I did get discharged from hospital… Continue reading A long overdue update

London · Medical and all things EDS · My faith

More Trust. Less Worry

Hello everyone! I want to again thank-you for all your continued support, encouragement and prayers. Right now I'm having a difficult time. Yesterday was a particularly bad day for me which resulted in a knee dislocation, my regular shoulder pain and then falling over and hitting my face off my bookcase - I really am… Continue reading More Trust. Less Worry