"No other disease in the history of modern medicine, has been neglected in such a way as Ehlers-Danlos syndrome." Professor Rodney Grahame. When I read this I am shocked and saddened to the core, you may think this statement is incorrect but Professor Rodney Grahame is the top UK specialist in the field of Ehlers-Danlos… Continue reading Ehlers-Danlos syndrome: the most neglected disease in the history of medicine.
Hello again, I apologise for torturing you with yet more of my ramblings, two days running. However I couldn't let today go by without at least some recognition. To most people today is just another ordinary day apart from the fact 29th February only comes around every 4 years. However to me and many others… Continue reading Rare Disease Day 2016
May is Ehlers Danlos Syndrome (EDS) awareness month and since EDS is such a rare disease with very little knowledge, both within society and the medical profession, I want to spread as much awareness of this horrible disorder as possible. Before I go much further I should recap for some of my newer readers of… Continue reading Ehlers Danlos Syndrome Awareness Month