As I’ve explained in previous posts, I have always had symptoms and signs of Ehlers-Danlos since I was a baby. However it wasn’t until I was 13 years old when my life dramatically changed, at the time I thought it was a short term simple injury, little did I know that 8 years later it would be worse than ever.
8 years ago today, 30th September 2006 was the last day I lived without having to use mobility aids, without having dislocations, medications or without surgery and hospital being regular things in my life. Before 30th September 2006 I was running around, playing hockey, dancing, competing in festivals and exams; and generally just living life as a normal 13 year old. Little did I know the minor yet painful fall on 30th September 2006 would change my life in big ways.
For year years now; that’s 96 months, 417 weeks and 2919 days my life life has been filled with frequent dislocations of many different joints, falls, pain, medications, hospital admissions, fainting, 11 surgeries, long and regular hospital appointments and exhausting physiotherapy sessions. I’m not going to lie, its been difficult, I’ve struggled, shed many tears and have had annoyance, upset and anger over how my life has turned around. Never did I imagine at 21 years old I would have come through what I have, or that I’d be laying in bed studying rather than enjoying a university experience. I’m not really sure what I may have imagined my life to be like, possibly driving a car, studying at uni and having a job; however despite what I thought never did I think it would turn out like this.
Although, don’t get me wrong, there past 8 years hasn’t been all doom and gloom. Yes I have struggled and battled with the horrible symptoms of EDS almost all of these 2919 days. However I’ve also laughed, had fun, made friends, celebrated the good times, passed several milestones, passed my GCSE’s and A-levels, and enjoyed the life which I have. It was within these 8 years that Jesus has become my Saviour, within these 8 years that I’ve had a growing relationship and faith in the Lord. The bond between mum and I has become stronger than ever before, I’ve recorded a CD, volunteered, went places, met new people and gained so many life experiences and opportunities. Truthfully I wouldn’t change any of this for anything.
So although I could spend today focussing on all the bad things that have happened to me within this period of time; my limited mobility, dislocations, pain and operations. I could focus on the things I’ve lost and sit wallowing in self-pity. But I don’t want to do that, I want to celebrate and be thankful for all the good things that has happened from September 2006 until now, to think back to the things God has got me through and rejoice over both the good and bad.
At times I miss things about my old life and at times I still wonder what my life would be like now without EDS or what my future will now hold. However these past 8 years have made me who I am today. God has been right by my side through everything and He will continue to be forever. Therefore I will continue to take each day as it comes, enjoying the good days and staying strong through the bad.
This isn’t a message where I want anyone to feel sorry for me, instead it’s a message of hope within the darkness. A message for everyone to live each day and focus on the good in life, do the things you enjoy and don’t allow the bad and difficult situations to stop you from living your life. None of us knows what is around the corner, none of us knows when our last day on this earth will be, so make the most of every opportunity and follow Jesus. Finding Jesus is the only thing that will bring true satisfaction in life. Cling on to God and walk each day by faith in Him.