CD · My faith · Prayer Requests · Truths of a chronic illness

Once Upon a Time…

Once upon a time…Once upon a time I could run, dance and move with ease. Once upon a time I could go out with friends, stay up late and still be bursting with energy. Once upon a time I could walk my dogs, draw, play piano and do other things I love without pain and exhaustion. Earlier today I had an overwhelming sense of grief for the things I can no longer do, however the more I thought about it, the more thankful I became at the life with Jesus I now have.

I am thankful for Jesus saving me. I am thankful that God has his outstretched arms around me right now, supporting, comforting and carrying me through this battle. I am thankful for my amazing family and friends. Thankful for the things that have changed for GOOD through having Ehlers-Danlos, despite the struggles I may face on a daily basis. Yes, I may never be able to do some of the things that I love again, I have missed out on living a normal teenage life, going to university, going out with friends and doing normal 21 year old things. However I have gained so much more, gained something more valuable than anything, I have Jesus. I have my family and my friends and although yes I may miss some things, I may get upset at the thought of how the last few years have been for me. But above all this, I have so much more to be happy and thankful for.

I truly have been blessed, God has given me the gift of singing, I am happy that I can spread God’s word through my voice and glorify Him. I am thankful for this wonderful opportunity to record this new CD and as a group we are excited to see where God leads us on this new journey. I would like to thank-you for praying for yesterday’s recording session, it was tough, it was VERY long, but praise the Lord all 20 songs were recorded and there wasn’t a trip to hospital this time. God is good!

However my body is just not strong enough for 6 hours of recording, today I’m in agony, from having sore joints, aching ribs from singing breathing and a very sore shoulder, to being absolutely exhausted. I must admit I’ve felt a little overwhelmed today and its moments like this which remind me I am not as fit and well as I used to be, my body just cannot cope with such things. Hopefully by tomorrow I will be starting to feel better, I would be extremely grateful if you could pray for me, that I would be feeling a bit better tomorrow and for this busy week ahead I have as I begin week 2 of my law degree. Thank-you all so much for your amazing love, support and kindness to me over the past few weeks, months and in some cases even years. I don’t deserve to have such wonderful family and friends.

So yes, at times I may miss the things I can no longer do, I get frustrated at the limitations my body places on me, I get upset at how much pain I am in and extreme fatigue I get from activities. But in perspective none of this matters, I have so much to be thankful for. I am thankful for the things I still can do and I praise God for His goodness.

“Sing to the LORD, all the earth; proclaim his salvation day after day. Declare his glory among the nations, his marvelous deeds among all peoples. For great is the LORD and most worthy of praise; he is to be feared above all gods. For all the gods of the nations are idols, but the LORD made the heavens. Splendor and majesty are before him; strength and joy in his dwelling place. Ascribe to the LORD, O families of nations, ascribe to the LORD glory and strength, ascribe to the LORD the glory due his name. Bring an offering and come before him; worship the LORD in the splendor of his holiness. Tremble before him, all the earth! The world is firmly established; it cannot be moved. Let the heavens rejoice, let the earth be glad; let them say among the nations, “The LORD reigns!”” 1 Chronicles 16:23-31. 

With love,

Carla xxx


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