Ehlers-Danlos syndrome: the most neglected disease in the history of medicine.

“No other disease in the history of modern medicine, has been neglected in such a way as Ehlers-Danlos syndrome.” Professor Rodney Grahame. When I read this I am shocked and saddened to the core, you may think this statement is incorrect but Professor Rodney Grahame is the top UK specialist in the field of Ehlers-Danlos…

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Haircut for Cancer

On a whim this week I decided to get my very long hair cut and donate it to ‘The Little Princess Trust,’ a fantastic charity making wigs for children suffering from cancer. Cancer Research UK provide statistics which show that around 30 children each week are diagnosed with cancer and therefore potentially each year alone there are…

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God is our safety

“There is only one way to happiness and that is to cease worrying about things which are beyond the power of our will.” Epictetus   In the next few days I go back to London again for my next inpatient stay in hospital which I have been dreading after the incredible pain from the time…

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